The National Fabry Disease Foundation is a 501(c)(3) nonprofit charitable organization that supports people with Fabry disease and their families.
Updated on December15, 2020.
2021 Virtual Meeting Series Recordings - Watch the videos from our 2021 meeting series. Select the Read More button below.
Updated on March 10, 2021.
2020 Fabry Family Conference Videos - Watch the video from our 2020 virtual Fabry Family Conference. Select the Read More button below.
Updated on November 23, 2020.
Our specialty pharmacy and infusion services help people face complex health conditions.
Updated June 14, 2021.
The NFDF provides families with Fabry disease free, confidential, 24/7, counseling and referrals via KGA, Inc. You can reach a counselor 24/7 by calling 800-648-9557
Updated November 23, 2020.
We help underinsured people with life-threatening, chronic and rare diseases get the medications and treatments they need.
Updated November 22, 2020.
Every day, we walk alongside thousands of patients and help break down their financial barriers to medical treatment by providing direct financial assistance.
Updated November 23, 2020
We offer financial assistance to people who are diagnosed with chronic medical conditions and whose household income qualifies. Let’s see if you or your patient is eligible.
Updated July 27, 2023.
We fight kidney disease on all fronts from prevention through post-transplant living.
Updated November 20, 2023.
Our specialty pharmacy and infusion services help people face complex health conditions.
Updated November 23, 2020.
We are committed to secure, accurate, and efficient collection and input of individual patient records into medical data registries.
Updated November 23,2020.
NORD programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Updated July 11, 2024.