April is Fabry Disease Awareness Month

We want everyone to be aware of Fabry disease!

Join us in spreading awareness about our rare, underdiagnosed, yet treatable disease. A better understanding can ultimately lead to better and longer lives for people with Fabry disease.

During the month of April, we raise awareness for Fabry disease by educating patients and family members, caregivers, healthcare professionals and the greater community to improve the recognition, diagnosis, understanding, and management of Fabry disease.

Fabry Disease Awareness Month in April was established in 2012. The Fabry International Network (FIN), the U.S. National Fabry Disease Foundation (NFDF), the U.S. Fabry Support & Information Group (FSIG), Fabry Australia, UK MPS Society (includes Fabry) and perhaps other Fabry disease advocacy groups and communities formally recognize April as our month to provide increased awareness about Fabry disease.

Normally, each year we work with Fabry community members in each state to obtain as many official state governors’ proclamations as possible. This program was interupted by the pandemic in 2020 and 2021. In 2022, we resumed the program to recognize Fabry disease awareness in April in every state but not every state has an official proclamation program or some states will only grant a week or a day. Each year you can see photos of governors' proclamations and a map of our progress at www.facebook.com/FabryDisease.

In 2022, the NFDF will distribute frequent news and information about Fabry disease via our e-newsletter service, our face book page at www.facebook.com/FabryDisease, and our Twitter account at www.twitter.com/FabryDisease1. You can subscribe to our e-newsletter at this e-Newsletter Subscription Link.

Please also see the following area of our website Fabry Disease Awareness Materials.  

What can you do to help increase awareness? It takes a village!