We go to a very special place each September when we hold our annual Fabry Family Education Conference followed by our annual annual Fabry Family Camp. We bring everyone to Greensboro, North Carolina as early as we can on Thursday for informal conference activities, then a full day of educational presentations on Friday. At about 4:30 pm on Friday, we transport those attending to nearby Victory Junction for the weekend camp. It is awesome!
See more details about these events in the "Community Announcement" on the left column of the home page.
Criteria to attend: If you have at least one child with Fabry disease that is 6 to 16 years old, you are eligible to bring your entire immediate family to our expense-free annual Charles Kleinschmidt Fabry Family Weekend Camp (Friday late afternoon to noon Sunday). All families attending camp are automatically signed up to attend our annual Fabry family education conference before camp (Thursday to Friday afternoon).
We provide transportation from around the country to the conference and camp, as well as conference hotel lodging and meals. We provide transportation from the conference to Victory Junction and back to the airport on Sunday. We contract with Victory Junction to provide lodging, meals, snacks, and loads of fun at camp. Travel to North Carolina is on Thursday for most participants.
If you plan to submit an application to attend this year's camp, please email Jerry at
We also need volunteers to support our camp. Family and friends, clinic staff and industry staff are welcome and encouraged to apply. It is a great experience! Please submit volunteer applications as soon as possible once we announce the start date in our periodic e-newsletter.
If you have questions, please contact Jerry at
Please share this information with your friends and family!
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