Fabry Disease Awareness Materials

Providing increased awareness about Fabry disease is very important!

The National Fabry Disease Foundation (NFDF) distributes awareness materials as described below. 

Being a rare disease, most people have not heard of Fabry disease. It is one of the about 7,000 known rare disorders. We know many Fabry disease specialists around the country, but most physicians do not know much about our disease.

We suspect that many people live their entire lives without knowing the underlying cause of their many Fabry disease symptoms. Many others are diagnosed very late after irreversible organ damage occurs. Increased awareness can help to change these tragic unnecessary circumstances to give people a chance at better and longer lives. 

Everything we can do to increase awareness of our disease is helpful to find those who remain undiagnosed and to improve the recognition, diagnoses, understanding, and management of Fabry disease. We wear wristbands, ribbons, pins, T-shirts, and display magnets on our cars bearing our logo, symbols, and slogans to prompt conversations about our disease to improve awareness and understanding.  

THE FABRY COMMUNITY'S OFFICIAL COLOR: In 2016, the Fabry community in the United States, Canada, and other participating countries adopted a dark blue as our official color in the spirit of a denim blue color used by other rare disease organizations. The color on the PMS color chart is PMS 541.

OUR OFFICIAL RIBBON: With an official color, we also adopted the official Fabry community ribbon design shown above. There are two versions of the ribbon. One version has gradient (fading) colors in the helix and one has solid colors in the helix. Producing some awareness materials with the gradient colors can be more expensive so we produced a second option. The art is available for anyone to use. The NFDF produces ribbons to send in our various mailings and can assist others in obtaining ribbons for special events. 

The font and the colors in the helix may vary somewhat depending on the organization and specific uses but the basic identity should remain the same for participating countries and organizations. The font in the original ribbon is Maiandra GD.

The design for the ribbon is Fabry community property to be used by anyone who wants to produce Fabry awareness materials.

Fabry Ribbon Gradient Colors (Vector files to produce ribbons with gradient colors)

Fabry Ribbon Solid Colors (Vector files to produce ribbons with solid colors) 

These are Abobe Illustrator files so everyone may not be able to open them but you can save them to your desktop and share them with whoever is producing awareness materials for you.

Please click HERE to read about how the official Fabry Disease Awareness Ribbon was developed!             

Other countries that adopt the ribbon may use it as it is or change the colors to better match their Fabry disease support group colors.

Other Awareness Materials Available

Our awareness wristbands bear the slogan "Fighting Fabry Disease ... Living Better Longer" on the outside of the wristband and National Fabry Disease Foundation contact information on the inside.

We provide 8GB credit-card-style USB drive alert cards (shown) as a dual purpose awareness product and USB storage drive to store information related to Fabry disease and medical information in an easily recognized convenient place.

Keep this card in your wallet or purse along with your My Health Handbook and Emergency Information booklet to be prepared in case of an emergency. 

How to Obtain Awareness Materials 

 My Health Handbook Kit: When Individuals with Fabry disease subscribe to the NFDF's Fabry Focus e-newsletter at this link: https://tinyurl.com/Fabry-Focus-E-News, we will follow up with an email to tell you how you can get our free Health Handbook kit. It may take us a couple of days to validate your account before you can log-in. Once validated, we will contact you to find out how many kits and other awareness materials you need for your family. The kit contains the items below. 

• The "My Heath Handbook and Emergency Information" booklet
• A stylish, durable carrying case
• An 8GB credit card style USB drive
• Awareness ribbon car magnet
• Awareness wristbands for your family
• Awareness ribbon lapel pins (metal)
• Awareness ribbon pins  

 Please contact This email address is being protected from spambots. You need JavaScript enabled to view it. for more information. 

Please do your part to increase Fabry awareness for the benefit of everyone with Fabry disease!