We are pleased to announce that the National Fabry Disease Foundation's 16th annual expense-free (except for parking and checked bag fees) Fabry Family Education Conference will be held in September this year.
What: 16th annual Fabry Family Education Conference: September 17-18, 2026 (travel on Wednesday for most attendees)
Where: Embassy Suites, Greensboro Airport, Greensboro, NC
Address: 204 Centerport Dr., Greensboro, NC 27409
Phone: (336) 668-4535
On Wednesday, many, if not most, individuals and families arrive at the conference hotel for check-in, conference registration, and pre-conference activities. The NFDF provides transportation and reserves family and volunteer hotel rooms. Meals are provided.
The conference begins with a conference exhibit hall on Thursday. Representatives from the pharmaceutical industry, clinics, and support organizations will be stationed at exhibit tables to provide information and answer questions.
An evening buffet dinner will be provided at 6:00 pm.
On Friday, while adults are in the educational presentation sessions, the children are in chaperoned activities rooms all day with contracted childcare workers from Jovie.
On Friday, educational presentations will be given by Fabry healthcare providers, pharmaceutical industry representatives, and representatives of support organizations. Various focus groups and surveys may take place on Wednesday and Thursday.
Please read our periodic e-newsletter and monitor our Facebook page (www.facebook.com/FabryDisease) for information about conference registration and updates.
Directly after the conference, families participating in our follow-on Fabry Family Camp at Victory Junction will board NFDF-provided buses for those who did not drive their own cars.
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We look forward to seeing everyone in September 2026.
The National Fabry Disease Foundation team (Jerry, Casey, and Hannah)